Luxembourg’s Prince Frederik Opened Up About ‘Devastating’ Rare Disease Before His Death at 22
Luxembourg’s Prince Frederik starred in a short film which detailed his “devastating” experience with a rare disease prior to ...
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Harnessing the power of film in a rare disease awareness campaign
Jennifer Wound of Genzyme illustrates the power of using film in rare disease awareness campaigns by discussing Genzyme's 'Facing Fabry Together' patient video. Disease awareness campaigns ...
Luxembourg’s Prince Frederik, 22, dies due to rare genetic disease
The son of Prince Robert of Luxembourg and Princess Julie of Nassau, Prince Frederik, has died at the age of 22.
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New film aims to raise awareness of rare disease cALD
Rare Disease Day saw the debut of a film that aims to raise awareness of cerebral adrenoleukodystrophy (cALD), a devastating and fatal condition with no pharmacological treatments available.
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‘Noah,’ a Documentary About a Woman With Seven Rare and Incurable Diseases, Acquired by Jambika Docs (EXCLUSIVE)
The film follows Noah, a 26-year-old activist, who has turned her battle against seven rare and incurable diseases into a powerful story of resilience, science advancements and hope. Her journey ...